If you would like support or assistance for your child, or to make a referral to the Children with Disabilities team at the Peterborough City Council, Telephone 01733 864180, or Visit www.fis.peterborough.gov.uk
Peterborough City Council is required by law to keep a register of children with disabilities living in Peterborough. Though you do not have to register your child if you do not want to.
The register helps to plan services for children with disabilities. The Families Information Service maintains the voluntary Disability Register for Peterborough.
The definition of disability is taken from the Equalities Act 2010 and can include:
Your child’s details will be automatically removed when your child reaches 25 years old, and can be removed earlier should you wish, by contacting the Families Information Service.
If you have any queries, Telephone the Families Information Service team on 01733 864446, or Email FIS@peterborough.gov.uk
The SEND Partnership Service offers impartial information, advice and support to parents/carers of, and children/young people with, Special Educational Needs and Disabilities. Contact Marion Deeley by Telephone 01733 863 979, or by Email email@example.com
The Local Offer gives children and young people with special educational needs or disabilities (SEND) and their families information about support and services in Peterborough, such as:
Telephone 01733 747474, or Visit www.fis.peterborough.gov.uk
01733 863 979
Little Miracles is a charity that supports families that have children with additional needs, disabilities, and life limiting conditions. They support the entire family, including parents, carers, the child with additional needs, as well as the siblings, and any family can receive support, even before they receive a formal diagnosis. They can also support parents to apply for and complete applications for Disability Living Allowance and Personal Independent Payments. Telephone 01733 262226, or Visit www.littlemiraclescharity.org.uk
Family Voice are a local registered charity who are actively seeking to improve services in all areas of the lives of children and young people with disabilities or additional needs. They are for Parents and Carers of children and young people, aged 0—25 years, with a disability or additional needs.
Telephone 01733 685510, or Visit www.familyvoice.org
‘Contact for families with disabled children’ run a free helpline for parents and carers with a disabled child aged from 0 to 25 years, living in any part of the UK. Your child does not need a diagnosis for you to call their helpline. Telephone 0808 808 3555, or Visit www.contact.org.uk
The Family Fund is a UK-wide charity that provides grants for essential items to families on low incomes raising disabled or seriously ill children.
Families can apply for grants for a wide variety of items that they feel could help their disabled child and ease some of the everyday pressures they face. These can include kitchen appliances, computers and tablets, furniture, family breaks and day trips, sensory toys, clothing and bedding, and more. The Fund cannot consider requests where a statutory agency has assessed a need and have a responsibility to provide the item.
Families who have previously received a grant from Family Fund before 1 April 2020 and whose circumstances have not changed can re-apply for further funding. Visit www.familyfund.org.uk
Disability Living Allowance (DLA) can help with the extra costs of bringing up your child. Claim DLA if your child is under 16 and:
Your claim starts from the date you call the Disability Living Allowance helpline. Telephone 0800 121 4600 to request your forms.
You have 6 weeks to complete the form and post it to the Department for Work and Pensions (DWP). This means that if successful, you will get money for those 90 days.
If you download the DLA form (GOV.UK), your claim will start from when the DWP receives your form.
Therefore, calling the DWP starts your claim period earlier
The DLA form asks for a descriptions of how your child’s condition affects their daily life. It is up to you to provide examples to show your child is eligible. This can be a challenging experience for parents. Visit DLA eligibility criteria (GOV.UK)
DLA has care and mobility components. Your child may be eligible for one or both. Each component has different rates of payment. The amount you receive depends on your child’s needs.
If your child needs:
If your child:
DWP’s information booklet and form for Claiming Disability Allowance for a child under 16 is a PDF document of over 60 pages.
About 40 pages are the form you need to fill in. Half the questions are tick boxes or personal information.
It can be emotional describing details of your child’s condition. Ask someone to help with this, such as a health professional, support worker or teacher, friend or family member.
Try to keep a diary of how your child’s condition affects them. This could be a notebook or piece of paper stuck to the fridge. It should be something that is easy to find, fill in, and refer to. DLA diary (Word template)
Write down everything your child needs during a day in as much detail as possible.
Think about how your child:
Speak with anyone involved in your child’s care, such as their therapists, doctor, social worker or teacher. Everyone will have a different perspective.
Think about the everyday things you do. It may seem obvious to you, but it may not be to the assessor. Give detail and say if things happen sometimes, a lot or all the time.
Do not write: “Cannot dress himself.” Do write: “My child needs help getting dressed every morning. He cannot put his arms through the sleeves of his t-shirt without my help. Every night my child needs help to take off his t-shirt and to put on his pyjamas.”
Do not write: “I help my child go to the toilet 5 times a day.” Do write: “My child needs help going to the toilet 5 times a day. She needs help removing her underwear and I have to clean and wash her after every visit to the toilet.”
The person making the decision is not a medical person. Use simple language in your answers. You should describe your child’s condition, but you do not have to use medical terms. The important thing is to describe how the condition affects your child’s daily life.
The DWP will compare your child with a non-disabled child of the same age. Concentrate on your child’s additional needs. The assessor knows that most children aged 3 need some help eating. If your child is unable to eat without you feeding them, explain this. Talk about your child’s mental and physical needs. It might be a physical condition, but it could cause your child distress.
Do not exaggerate but provide examples of your child’s bad days. What seems normal or easy to you might not be to others, especially if you have adapted to your child’s condition. Make sure you include everything your child finds difficult or impossible to do, even if it is not every day. And explain why it is difficult or impossible.
Include as much evidence as you can, such as:
Do not include:
If you need more space than the form allows, you can include extra information on separate sheets of paper.
Make copies of the completed form and any extra evidence before sending it to the DWP.
Once the DWP has assessed your form, they will contact you with their decision. This usually takes about 40 days.
If you challenge the DWP’s decision, they may need more information. This could include a physical assessment.